Well, clearly I didn’t update for quite some time. Life got busy. I found a great firm that has been willing to work with me regarding my schedule and babies needs. I thought I’d be able to post once the babies were home and I didn’t need to run back and forth to the hospital. Boy was I wrong, I wrote this last Friday morning:
Monday: My MIL has left and Brise and I are alone. Does it go smoothly? No! Aubrey has developed a stench from his wound that smells like death. Lydia won't do anything except vomit if you lay her down. It seems like she and sleep had a falling out.
Tuesday: Hooray! Taking 2 babies to the pediatrician. Pediatrician says he doesn't follow jaundice, we will need to consult with someone else. Pediatrician winces at the smell of Aubrey's wound and says we should maybe meet with surgery sooner. I realize that I have once again forgotten vital diaper bag ingredients - burp cloths and a pacifier. Doctor doubles Lydia's prevacid and gives tacit approval for her to sleep on an angle.
Wednesday: Surgeon refers to Aubrey as a "kind of science experiment" and says maybe there is almost nothing protecting his intestines from the outside world. He trims off some of the wound covering and prescribes baths and wrapping him in gauze for added "protection." My baby's abdominal cavity is reliant on gauze for security. Literally holding on by a thread. Lydia still fighting with sleep but vomits a lot. Also, early intervention comes by when I'm not home and my husband signs lots of paperwork and doesn't remember what it said and didn't get a copy.
Thursday: Finn is coming home! Yay! I work from 3:00 A.M. to 10:00 A.M. so I have the day free. We learn how to use his oxygen. Seems simple. While at the hospital, my mom who is visiting to help calls and reports that my dog bit her dog. I call my vet on the way home to make appointment. Get home, try to pump, and here comes early intervention back to ask 2 hours of questions as slowly as possible and come away with an FSP of "we'd like the babies to enjoy eating." Yay!...? Take dog to vet. He's ok. Bring dog home, Oxygen monitor WON'T SHUT UP. Cry. Yell at monitor. Try to bathe babies. Aubrey poops in the bathtub. End bath. Change probe on oxygen monitor. Cry. Try to turn monitor off. Watch youtube video on pulseox placement. Cry. Try to silence monitor. Give up and call hometown oxygen. Wait on hold for 25 minutes. Finally, someone answers. Alarm stops going off. Tell hometown oxygen we don't need them. Apologize to husband and mother for breaking down. Feel like a failure. Pump. Sleep. Wake up at 4:00 A.M. to do it all over again.
Hopefully it gets easier!